I’ve been thinking a lot about how I’m managing a mess of emotion and rush of thoughts with the basics of doing my normal life.

I worry that I’ve created an echo chamber with this blog and twitter account.  I’ve read and shared so many stories though of people who have felt the same of their writing and of the warm responses they have had from people who had felt alone and appreciated the moral support.

It helps reinforce the importance of the good that personal blogging on terrible, tragic subjects can do.

It lets people know that they are not alone, that there are people who are willing to hear and share their stories.  It provides a map and guide for all that has happened and that which is yet to come. It allows us to give a gentle warning and cautious reassurance that it won’t be over in a few weeks or months.  It lets people know that there isn’t a way to do it right and that more energy than they could imagine will be on managing the reactions of other people.

Awareness raising feels like such a woolly word but there is value to it if it helps people feel less alone and helps others to understand what their friend, children, sibling or employee may be going through and what can be done to help.  What to say and what not to say.  Why they may react the way that they do to polite, freely given and well meant expressions of pity and sympathy.

It gives prospective parents and those in the angst of expecting a rainbow child the information and tools and permission to challenge health professionals and to act on their instincts without fear.

Complaint without action is dangerously close to being a whinge.  By taking action through writing, through awareness raising and providing support it can turn the potentially destructive aspects of grief into a force for good and change.

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My Random Musings